17th May is Neurofibromatosis awarness day.
I'm holding a chairty coffee morning to raise money for the Childhood Tumour Trust, a small charity that helps children and their families who have the genetic condition called Neurofibromatosis (NF1). They campain to get medical proffessionals to understand the condition and give children the opportunity to meet together on days out and camps.
There is a fabulous raffle with over 30 fantastic prizes donated from local business such as a family ticket to Cadbury World, a family pass to Hatton World, a meal for two at Butchers Social with a bottle of champagne, £30 John Lewis voucher, two Cineworld tickets, meal for two at Bella Italia with a glass of wine and £25 to spend at James Vernon Butchers.
Neurofibromatosis causes tumours to grow on nerve endings in and under the skin. It can cause amputation, blindness, cancer and deformities. People who have NF1 are regularly in pain. Learning dissabilties are a common feature along with many other symptoms. Approximately 1 in 2500 people are born with NF1 but there may be many more as it is often undiagnosed. NF1 can be passed from parents but it can occur through genetic mutation. It can affect ANYONE!
Please do join us at Knowle and Dorridge Cricket Club.